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Thursday, October 20, 2011

The help is finally here !!!

Ever since my son was diagnosed , all I wanted was for him to have a full time CARD program. recovery was still in far sight but , I knew if there was something he needed it was aba therapy ..may I add good aba therapy. In the past we have done numerous things for Hasan to be able to fund for this therapy, by the way which is recommended by surgeon general and is the ONLY therapy that is clinically proven to help children with Autism ,become higher functioning(more neurotypical). I really don't care what others say or do, all I know is that it helps my child and when i could not afford the 40 hours per week, I did the remaining 15 -20 hours myself. He had to get better that is all I know. So finally we are getting his full time CARD program!!!!! ( I have goose bumps as I type this) I'm forever grateful to the governor and even more important my uncle for which I am able to get Hasan this help through insurance. We are pulling him out of the severe classroom in public school and putting him in a private Pre-K (NORMAL CLASS) with a CARD shadow/aide. I know in my heart this will be the best decision I have ever made for this child. He will just flourish and thrive here. I want him to be "HAPPY" ..I want him to understand what "FUN" means, This child works so hard everyday! I salute you my son.........you are the best thing that has ever happened to a woman like me ...you have made me so strong ...I pray every step of the way you reach great achievements , the best of health and happiness ...and may Recovery be reaching you very soon. Which it will !!!!!!!!!!!!! I'm taking a huge leap of Faith.....Staying Positive all the way !!!!!!!!!!!! Anything is possible when you " BELIEVE". Talk to you guys later :)

Tuesday, September 27, 2011

A Big Burning Question .....

Ok so we have been working with CARD Center for autism related disoreder for 5 months now and it has been amazing alhumdullilah ! Hasan has had 23 hours of aba per week and now the 11 extra for 2 months ..still not the 40 hours of aba I wanted ...but nonetheless, took an arm and a leg to get that therapy going. We have thought him how to sit ,to stand, to walk, to talk, to tell us when he gets hurt ( knowing he is non responsive to pain) which really scares me :( and a bunch of other things.After all that hard work... plus school and speech therapy our day is no where close to normal , we have an awesome home team for Hasan.....But we are really struggling with the school we always have actually....The new School district has put Hasan in a placement none of the team members are happy with they put him in a severe class room ! I know he gets more attention but at the same time there will be more behaviors to copy ..BAD behaviors..So the question is how to approach it and change it....I know many of the parents struggle with the school's funding .I know Hasan needs a mainstream class...he can IMITATE he knows whats going on ...He needs to be challenged...will the school district approve our request? ..what approach should I take with them? ... we work so hard at home ..... following through with Hasan ...I don't want all of that to get reversed..I am clueless what to do and dreading it  ...He needs mainstreaming ...he needs a Shadow to keep him on task ...I will get it for him though,whatever it takes!!! ...because in my mind it is time to put on those COMBAT BOOTS !! Folks it is time to enter the battle field (armed of course), this really does mean war ya know :/

Tuesday, September 20, 2011

Clearing packets

We finally started our second round of clearing packets that we had for Hasan. These were from Rudi verspoor and right about 3 weeks ago we started the " A" packet of clearing if you are a follower well you know how much I panicked when Hasan had huge mouth sores ...It was definitely a clearing, as soon as we gave the first pack Hasan was super stimmy ( if your new to the Autism world 'stimmy " means hyperactive non compliant and maybe have  unusual preoccupations) Trust me I can put that into worse words :D . But anyhow ....as soon as we gave the second pack he broke out with another mouth sore and within hours started coughing...well Iam not surprised we are also clearing the Pneomococal vaccine ( Pneumonia) ...he has had a temp the first day and now on the 4th day .....one good thing is he cleaned up all by himself  ....and it wasnt even his mess..? well I hope this positive change stays......For you ..your thinking sheesh big woopty deal ...hah!!? ..he cleaned up !? well ..we are talking about a child if told to clean up would hit the walls till he dropped to the floor .....so Yeah it is a big deal !!!....something positive I always appreciate ....if you are a mommy warrior like me ..you know what Iam talking about .......moving forward ...lets hope we stay positive ..yet another peel of the onion has been shed ....the Autism onion .....though it's not a real onion ....my eyes are teary anyways..............till the next vaccine clearing ...stay positive!

Tuesday, September 6, 2011

viral sores from hell .............

It has been a very long and painful labor day weekend for Hasan. His birthday this year was probably the most painful one yet :( Since we have cleared the viral vaccines I think they are surfacing now. Since he has huge sore all over his lips. Started on the inside of his upper lip then transferred to the bottom lip right under it  and now next to it and round it! So he has been biting on them and now they are infected ...................I don't know how to heal him. The doctors don't really say or do anything ............I have been begging them for something as his lips are bleeding and have pus in them for three days.......oh the agony I hear in his voice when he cries .....Praying to the lord that his DAN! doctor will prescribe something today and also talking to the homeopath in two hours. I need to fix this ...I need to fix it now....I am posting pictures of when the sore just started ..they are 100% worse today..:(

Wednesday, August 17, 2011

For the love of food.....

I have been meaning to share some amazing recipes for a while, that I have collected over time. Tonight I finally was able to sit down and type. The first recipe I call it, Pumpkin Halwa the kiddos loved it. If your little one loves anything kinda like gummy bears/thick jello ( hard to describe) they would love this. Heres the recipe:
Pumpkin 2 Cups Chopped
Honey/agave nectar 1/3 Cup or less 
coconut milk 1/2 cup
Green Cardamom 1
coconut butter 5 tbs 
Cashews 10 Optional
Raisins 8
1 pack knox gelatin powder ( or whichever one you use)

This recipe is very forgiving you can add or take out according to whatever your taste or diet requires. Fry the chopped pumpkin or acorn squash up until slightly browned up. Add all the ingredients that remain except the gelatin powder. Cook for 15 minutes on low. Turn the heat off and mix the gelatin in 3 tbs of water and mix it really quickly in the cooked pumpkin mixture.Pour the mixture into the desired shape pa. Kids love food they can hold and eat so get creative. Let it set for two hours then chill. If you cannot use the above sweeteners you can try stevia as well as long as you don't cook it.


Pink Diamonds this one is really good I love it specially since it is Ramadan and I miss home soo much. My dadi aka grandma would love this one. it has cashew milk , rose water, vanilla , honey and gelatin powder. If your into agar agar you can use that. But I used gelatin powder which is allowed on the SC diet plus its more gut healing asd well. 
Recipe:
2 envelopes Knox gelatin powder
11/2 cups cashew milk/coconut milk ( you can use a thicker milk substitute here)
2 tsp rose water 
4 tbs honey/ or stevia powder or pear sauce 1/2 cup
few drops vanilla.
Heat cashew / coconut milk till bubbling. Close the heat. Then mix the gelatin powder with 3 tbs water till dissolved. Mix everything together and let it set. Chill for a few hours. This one is really good for really hot days. Rose water is very soothing for the stomach. You can find it in ethinic stores  . I get it from and Indian store in Irvine for $2 its nothing expensive ! do try it :)


Chicken Satay...
Recipe: 
1/2 lb chicken tenders.
1/2 lime.
1/2 tsp peanut or sesame oil.
pinch of fresh grated ginger and umeplum vineger 1/2 tsp.( whole foods)
Marinate chicken with with the above ingredients for two hours. Heat up some extra oil any kind you use . I used coconut oil. You don't have to use skewers :) . Fry them up on both side till well cooked and serve with a dipping sauce of choice.
We made a pinenut butter and ginger/lime dipping sauce pretty simple. 
3 tbs pinenuts ( trader joes)
2 tbls light tasting oil
salt and a few drops lime. Blend it up , then top with a tiny bit of ginger. I use ginger since it helps with digestion, if your kids don't like it don't use it! or you can get them familiar with some of the healing spices.

Sunday, August 14, 2011

Screw the funding for aba..Ill just get my own..

So getting a good behavioral therapist is one issue but getting enough ours funded is another. I have finally added a new member to Hasan's team. She is going to be working with Hasan one on one for and additional 8 hours per week. This is helpful these days specially since I have not been able to function 100%. so 23 hours per week from the regional center and now 8 more...31 hours per week not 40 yet but will get there too. My goal is to have Hasan in full time therapy 40 hours per week. Plus school, social skills and speech therapy. He needs this extra push rightnow.

Wednesday, August 3, 2011

Sequential Homeopathy pointers.

Some of my close friends have asked me  about how and when to ask for specific remedies from their homeopaths. In this post I will be including some basic strategies to keep in mind when working with a homeopath who will understand your child's individual needs.

  1. Make a list of the most problematic health issues your child has ,obvious things like, doesn't sleep well, anxiety,aggression,constipation, elopement,extended belly, sensitive to sounds, etc and ask the homeopath to give you "support remedies". Support just means they will help make it easier for you to get through the day with your child while you are treating the underlying cause.
  2. I knew Hasan had inflammation because we tested him for it and the numbers were sky high, so I asked for a remedy to reduce inflammation because I did NOT want to  give him any prescriptions. 
  3. Payers patch is a good one for our kiddos who don't absorb their food and don't grow much. I asked the homeopath myself to make sure there was something to help with it..That helped with aggression a bit.  As I believed that whenever he ate he started hitting his head ...food does cause discomfort for him...what else could I do ? Not feed him ? So that was very important.
  4. Thymus support, we were on it biomedically but there had to be something in homeopathy as well, there is you just have to ask.
  5. Be stubborn and ask for what your child needs, even if they are simple things so you get what you need, it will make a difference.
  6. I wrote a timeline, of events and traumas that happened in Hasan's life so it would give me a clear Map on how to gauge my way through clearing the incidents to get his immune system up and running. So use that as a guide , add or takeout what is needed, do not hold back.
For example we saw Dr. Sudhir Gupta and he recommended IVIG for hasan but I just could not get the funds together so I asked my homeopath for something to help in the meantime and they recommended Gama globulin,it does almost the same thing as Intravenous Immuno globins but it  is NOT a blood product so there are No sideeffects. It is NOT a replacement but it helps, until you can afford $5000 everymonth. Any other questions email me for sure :) I would be glad to share. On a side note as a mom to all my mama warriors, dont stop ! keep going ...there are things that need to be done...and your the one who needs to do them. Also give yourself some time too spend it with your best friend .....or someone you love and cares for you back ...you wont be sorry ... you'll be surprised on the strength it gives you. :)

Is this PANDAS ...?

So for all; of you that don't know what PANDAS it is the short for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD)! I don't what is going on but I have a monster in my hands.....At the moment I have dropped ALL supplements for Hasan...I mean all of them. He seems 20% calmer I think ? Well its a a start. My son went from a sweet loving little fella, to an aggressive, kicking punching and screaming little boy. That was the most difficult thing to go through. Specially when I was doing it alone... Things are very rocky with me and his dad still....so this has been all in all a very tough month. Dr.Green just prescribed something for hasan it is call , metro benzoate , I think it is for parasites and bacteria. Have not started that yet. So lets see what it does, researching a bit now ..Stay with me for an update and some really good pointers for sequential homeopathy and some yummy recipes we gotta share some food love :)

Monday, August 1, 2011

Obsessed a little?

Haa!! You think ..? I have been dealing with Hasan's HUGE .....I mean HUGE  OCD's lately ...he is become a hoarder ..if you don't know what that means .....Let me explain a little..So everything in Autism is way more intense than in a regular little child. Hasan has been carrying around every type,size ,make and model of everything Lion/tiger like...this is a disaster! He always liked to carry little toys in his hands that was normal a little atleast when he was 2..but now its like the big kahuna of that behavior....I am so upset,sad,angry and helpless. His behavioral team has suggested interventions to reduce or eliminate this problem. But the therapist are here 18 hours  week. Guess who has to follow through the rest of the time ...who else ? MEEEEE of course ..I am the mom ...I have to do it...so its been 12 days 4 hours of sleep each night and hiding his little toy obsessions 24/7. Why has the OCD increased 10 fold ? The two new things started was EDTA suppositories and earth dragon supplement. I think Iam pulling the plug on those to see what happens today..enough is enough ...or are we dealing with Strep !? Calling up the Doc this morning to find out (hoping he'll have a n answer).......You do know there's a gut brain connection don't you ?

Wednesday, July 6, 2011

Chelation update.........

One thing I wanted to write in this post is that...............I'm tired ...really tired ......tired of being tired ...do you get it ...? I just cant seem to have the energy to be giving Hasan the 3 hours of one on one of speech and aba that I used to in michigan .........its just been crazy after moving to California...First we moved from Michigan...into a Condo in Tustin ........a year later we moved to Irvine...oh yeah ..Irvine can I quickly add this ....Irvine= Snob central !! Here is where the rich people dwell.. yeah you know em ..the ones with the really long noses....who really see you as an outcast lol !! specially if you have a less than perfect child.....well guess what ...Ive been learning how to be a " snob" lately..dont worry ...only when Iam bombarded with weird looks and jugdmental comments i just look away ..haha But thats the best snob I can be ever !! ..but its all good.....(because I  vented) Iam good now :) lol ......Soooooooooo hows it hanging everyone ? For us ..its been a long two months ..very very long two months!!....Dr. Green has changed the chelation protocol on my request ..as we have been chelating for six months now...and I see a Plateau with focus , attention and IQ ......so we are adding Ca Edta suppositories twice per week followed by Intramuscular DMPS ......Iam praying it only does good.iA.........Ca Edta is known for attracting more lead which seems to be higher in the challenge test we provoked with Hasan .......I have been researching about lead and have found some very interesting facts about lead toxicity ....Well most of them Match exactly Hasan.....Lead deposits in the eyes and soft tissues.....is this the reason he has HUGE dark grey shadows on the white part of his eye? hmmmmmmm maybe ...? well I have heard kids rubbing their eyes alot or who have visual problems ..for example dual vision have been known to be lead toxic ..and when we use Ca edta to bind to it ...the stims increase at first .metal redistribution I suppose? ..thats why we are following up the ca edta with the IM DMPS to catch the floating metals....thats our new protocol ...wish us luck .............we are about to go on a roller coaster ride again .....

Saturday, July 2, 2011

Clearing MMR .........Rudi Verspoor

We gave our first MMR clearing to Hasan  ...........along with a few others.......the roughest week I have seen with Hasan since he was about 2 years old.........I hope we are clearing it .....99 degree temp first day ............face a bit swollen and cried non stop ...my poor baby ..Dear Almighty lord......please help this child ........sigh*

Apraxia.........

Yes so I am finally opening up about it .I think its time I put  this information out there..considering the fact ..it has been eating me bit by bit each day ..........Sooooooooo here goes !! First we had a Autism diagnosis....then this ..?Well lets put it this way , I finally got my answers to why Hasan cant speak clearly no matter how many diets and vitamins I poured down him :(  He has Apraxia ...Yes he does ...........and he's never ever supposed to talk clearly ....ever ..........thats what all the (13 speech therapists we have seen ....ahan !3 alright! )have told me  over the past 3 years.......well you know what .............we have found a speech therapist (alhmd)who thinks the past speech pathologist can kiss my Big fat lazy Bum!! Oh yeah I said it ....you read it I said Bum!!! She has been working sooo hard with Hasan...and he is trying so hard.....along with the Oxygen therapy we are trying to talk clearer .every day ..............if Autism wasnt blocking is social interaction .........as well as all the weird sounds he tries to make ...........my child could tell me .I love you instead of of I you you .........But you know what .............this phase shall pass too.when I started this journey with Hasan...I knew every step would be a brand new challenge .be it financial, Marital, or just plane old difficult to achieve ......................You should know by Now ........I dont give up , we don't give up............would I be considered a warrior if I did?? .............who knows and honestly that doesn't matter Only Hasan does .but Iam not giving up .......Speech is on the way ................and I can smell sweet victory .........by the way yes I did type Marital it wasn't a typo .....this post is out to the world now ..Hope it give you strength ......Just believe and keep going ..........

Friday, July 1, 2011

Custom Probiotics.

So I have been waiting to post specifically about Custom Probiotics for a while now. As you know Hasan's Gut problems are very significant. But this probiotic seems to help the most, mostly with his tummy, Language as well as awareness. It is pricey but I would not waste money on any other probiotic at the health food store. We use the D-lactate free Probiotic from Custom Probiotics. We have used many other's from every Kirkman brand, Klaires, threelac, theralac, Culturelle Sac B . It was not until we added the probiotic that our Chelator worked !....Gut bacteria is CRUCIAL in detoxification! I cannot stress enough. We give one adult scoop on an EMPTY stomach in the morning, and One scoop before bed time with 2 tsp Cod liver oil, Plus 500mg GLA from primrose oil , it should be Hexane free.
One thing I would like to say, when you start your probiotic start very slow( for e.g.half child scoop once a day slowly increasing every three days)  And always be prepared for bad behaviors for atleast 3 weeks after started any Antifungal or Immune enhancing therapy. Only then will you be able to gauge your child's true response and lastly please Dont give up ! Unless you push through you will never know what is at the end of the tunnel ! Be persistant .................................

Sunday, May 1, 2011

Houston Homeopathy ..

So as you all know we have started hasan on sequential homeopathy and it has been a very rocky road so far...I saw some increased eye contact but for now that is about it. Iam praying it will work for us as we spend $1000 on it every month ..yes its like having a mortgage... that is why Hasan's dad and me are trying to think of ways to fund his treatments ..let alone the cost of aba  therapy ..its a shame this has to be a constant battle with the schoolsand with the county .... We will keep trying and keep pushing forward ... Hasan has been very hyperactive and visual stims are horrible ....this week was full of non compliance and terrible meltdowns ...I have had a very difficult time with him ... I just hope next week will be better ... clearing dtap vaccine next week...as well as difflucan/dmps/antibiotics etc ...Lets see how this goes....ya ali madad !

Sunday, April 17, 2011

Dr Sudhir Gupta

We have gone for our initial blood work and waiting to go discuss the results of the tests for Hasan on May 4th . Lets hope for the best. These test results will detemine the level of Immune deficiency Hasan has. I cant wait will answers some big questions.....for now we loved meeting dr.Gupta he is a wonderful doctor!

Rudi Verspoor!!!!! Homeopathy has started.

We have started with Rudi verspoor ! This has been long awaited ...finally I made the call and made an appointment with Rudi. I just wanted to "reverse" somethings that in my mind have effected Hasan in a negative way, and "sequential homeopathy" was the only way we could have done this. We received the first few remedies which included a remedy for OCD's as well as the big Antibiotic drainage. Since Hasan was on antibiotic's for 2 years of his life, due to a mis diagnosis, it played a huge role in the way the vaccines have effected him. We also did a remedy named Nat m for three days, which was very similar to somethings that he has indicated including the night sweats and very cold extremities. He is very emotional and is not transitioning well, visual stims have increased ten fold ! He gave me trouble just to walk into sisters school to pick her up. He wanted to stay out and break all the leaves off the bushes. This is new! ......he also said " MY BABY"  very clearly right after imitating me when I said ...hi my baby to him. This is also new.....He is super hyper and stimmy. Wants to play peek- a -bo with the pillows on my bed ...this came out after 3 years ! The big new thing is ...the first day of the NAT M remedy he sang row row boat in a very high pitch ..he NEVER tried to attempt to sing when I played that with him. We are still chelating with Intramuscular DMPS 200 mg/ml solution...0.5 ml once  a week, this week we got the vial from Park pharmacy in Irvine. We have also re started Dipan 9 which is a pancreatic enzymes our DAN! thought since his pnacreatic function was very low this would help ....tummy still extended though. Well....Im hoping the good things stay and the huge tantrums while transitioning end soon. Could this be homeopathy of have we hit a good round in chelation ...? will be observing him ...we speak to Rudi on the 24th again ...I cannot wait ! God You are watching over us arent you :D  !!!! Im going to say Mashallah at the end of this post ..so I dont jinx us ....50 hours of therapy per week still this is including school..aba is just 25 hours per week..starting speech soon ..if all goes well.

Saturday, March 19, 2011

NAET and why I took this path.

Honestly as we had started doing DMPS shot for Hasan, I had started to feel extremely guilty , about giving him his shots. He cried for so long and I just couldnt bare it, even though I know my lovely child is mercury and lead toxic( proved by testing) I just cant do this for too long.
So I searched how to rebuild his allergy prone immune system and landed on NAET. But was not convinced at all to start treating him.
The next thing was I had started praying everynight to ask God to guide me , and show me sign on how to help my son and within the day, I stepped on a tacky piece of gum, as I walked to pick Hasan up from school. I bend down to remove it from my shoe, on it was stuck a fortune cookie wrapper saying......" what you seek lies in your back yard".
I still did thought wow ! whats in my back yard....? hehe being somewhat shallow, but the day went on with numerous hours of aba therapy and so on.
The next day as I searched some things , I got very fed up....I landed on an article saying Dr Devi Namburipad and autism recovery !! Now when I hear that it does grab my attention, I found out the founder of this therapy is right here in California, just like Dr, Gupta !
I knew there had to be a reason I keep stumbling upon her name ....she has alot to do with autism....and she's in my very own backyard !!
That Fortune cookie now made sense.................................

Saturday, February 12, 2011

Difflucan and other antifungals ...

So Todays post is short , but I had to document it for future reference. We have been doing Difflucan for hasan for 4 months now, along with biotin and custom probiotics for our yeast/candida protocol. For those of you who might think ..yeast ? candida ? what does that have to do with Autism.
Well it has a major role in autism, atleast for most of the children i have ever known. If your child giggles for no reason, seems spaced out and cannot focus at times, most certainly it is yeast. With all the children I know they have been put on several antibiotics for numerous ear infections most of which already have had tubes put in their ears.
Anyways....it is very hard to eradicate it specially with a weakened or compromised immune system like Hasans. It will surely keep coming back. Balancing the immune systems is key, as well as fixing digestive issues so food can be used up and assimilated instead of fermenting in the childs stomach. Also the number one cuase for  " leaky gut" aka allergies ...is YEAST!.
Other natural remedies we do for daily Candida reduction include fresh carrot,zuchinni  squash and garlic juice. The best of which all have been ofcourse difflucan, but the fresh home made juice,are really helping with his energy levels as he is always soooo I mean sooo lethargic.
I am looking into candex,cadidase and capryllic acid,for use in the near future for an option into non-pharmaceutical antifungals.
The other thing we do is 1 tsp or coconut oil (Raw) 3 times per day, which is also an antibacterial, dissolves viral cell walls as well as is an amazing antifungal.
Will post when I start with the naturals, next month keep your eyes out for an antifungal post.

Friday, February 11, 2011

Oxygen therapy HBOT ....

If there would be one thing, I would put my hard earned money into, it would be no doubt, hyperbaric oxygen therapy.
There is two kinds of oxygen therapy one is mild chamber which can be done at home. And the other hard chamber which has to be done in a clinic or hospital setting.
This therapy has been used to treat many conditions such as carbon monoxide poisoning,cerebral palsy etc. But autism was not on the list. The point of this therapy is that it can "revive" the dead tissues of the brain and body by increasing oxygen and blood flow ...to those dead tissues. Like some parts of the brain and GI system are damaged in autism due to the amount of mercury in the soft tissue ( where did this mercury come from ? take a WILD guess !) So those tissues a dead now ...and thus their is an effect on the brain ....as well as the GI tract.
Anyways we tried hbot because it made sense to us. We thought if the doctors keep talking about Viruses,metals,parasites,candida inflammation in the brain...we thought ...oh "oxygen"  It can take care of all those things ..and "heal the gut" as well. Which we have been working on for the past 3 years of my 4 1/2 year olds life. And thought we need our magic bullet now. For everyone it probably doesnt make sense ..but living with a child who doesnt understand what the heck we are saying ...ever .... we thought its going to work..So
Our protocol which our Doctor did was higher than usual. 1.75 ATA .....40 dives .....the break of 4 weeks....then 2.0 ATA....40 dives.......so ...This protocol is very high and is not recommended for everyone ..but on the basis of Hasans testing, we were dealing with HUGGE massive amounts of Inflammation ......in his brain.
Inflammation is like "Fire" in the brain.....which was put out my HBOT. His receptive language was at the age of a 4 month old baby ....it jumped to 21 months. In 3 months !!  All I can say is Alhumdulliah and thank God for his glory !
The doctor wants us to do mild chamber but since insurance does not cover it ..it is a bit expensive and we are in the process of saving up again. So soon we do the mild chamber rental at home. Fingers crossed..We cant wait.
We did our Clinic treatments here

http://www.californiahyperbarics.com/hbot.html

Thursday, February 10, 2011

Chelation...I know we do Transdermal( cream)

So....this was one thing I can assure you I was butt scared to even think about. After reading some stories of chelation going wrong.
Well, I follow this controvercial doctor, who "cured" his son of autism...that sounded promising to me, but really ... does Hasan really have metals..? None of the blood and urine and pooo tests showed high levels of metals ...?
A big question mark, so I held off...and then I had noticed Hasan had not improved any...even with 30 hours of aba per week...plus ......speech, ot...sensory integeration as well..?
Okay hello ..?Why..?
Why is he not moving along...why ? and why have we plateaued ? Well....Then on Facebook I met a mom....actually I read her post..and that post has forever changed my opinion about chelation ...and how media yes just media and bad doctors ( sorry for the good docs who are reading this but ...you know what Iam talking about guys)
She said her son is slowly becoming more "typical"with doing Dr Buttar's protocol...
Me being soooo Proactive about getting to learn and apply anything safe and tried amongst my very few trsuted people I know....added her ...(Iam not mentioning her name as i did not ask her permission) but  she also lived in california..so I emailed her and then called her and she explained everything to me and the safety this protocol had of Transdermal DMPS ....(dont google guys,everything is rubbish on google trust me)

So we started the DMPS..plus gltathione gel....every other day.....and then suddenly my son started getting scared of everything ..regular things....
die off ? maybe .....for those of you who dont know what die off is ..its a detix reaction........getting worse before better ...have you heard that ? Well thats what "die off means" and yeah..
She also told me PROBIOTICS ....are a must....so I started him on Custom Probiotics ......upped the dose to double of what had been recommended, as we needed more than that( Tummy issues will write about that soon) Together both ...Hasan got a temperature a Detox temperatture of 104...which is normally wha he gets whenever he gets sick...
Day 3 of 99.3 ...compounded Motrin only given the first day ONE time....he started requesting things !!
Yes requesting things !!
I mean my son ....the way he ever ... I mean ever asked for anything ......ever ...would be taking my hand ...or whoevers hand ...and throwing it or pushing it to what he wants ....
but never will he actually ask for anything..thats just tooo " normal" . and at the end I will write though many bad bevaviors came with it ....those were temporary...but a good  rx and a good compounding pharmacy is a must...we used park pharmacy in irvine.....then switched to creative compounds which is in oregon and are now doing 200mg dmpl plus 200 mg glutathione  twice a day for 3 days...then break.....in lotion form...and yeah during "on days" Hasan pees alot more ...since he is excreted the metals...from the soo called immunizations ....never am I touching those again..

Thursday, October 7, 2010

Hasans daily bath routine..

We give Hasan epsom salt baths with some added baking soda .. about 1 tsp .. to make his bath more alkaline, it helps him calm down.. and helps his sulphation pathway as well ( children with autism have trouble with sulphation) ... he is low in this process as many of our children on the spectrum.

Apple cider vinegar is very good in cleansing and his constipation I give him 1/2 tsp .. not much mixed with some purified warm water and stevia ... Also Hasan has a very weak liver... and this helps with that as well...
Apple cider vinegar has many many health benefits.. i will post a list soon.. stay tuned..

At 7 months of age.. the damage was done.. my son is gone... he is not a happy healthy child anymore

After this point Hasan has numerour ear infections.... cried all the time and wanted to be alone ...

with dad before his 3 month vaccinations

Hasan before his autism... atleast this is what I think ..

Very responsive ... very attatched to me .... stayed always close to me ..

Vitamin A protocol..

We have just completed the high dose vitamin A protocol for high measles titres ... we did not see any rashes from it as mentioned by groups memebers on gfcfkids and valtrexMB12.
we are still on the maintainance dose.. Well... maybe we didnt get anything this time.. will be on the lookout ..for gains.. one thing though exactly 8 days after .. we did get a low grade temperature with runny stuffy nose... Im praying it was the die off reaction ?...

Saturday, August 14, 2010

Today is officially research day on Dana's website...

Salute to Dana.. today ....she is a brave, intelligent women ... who needs more appreciation than she gets.. I do'nt know where I would be today without you Dana.
I Thank God everyday for your help that you have given me in ways you don't even know. The nights and days where Iam lost, sad, depressed and clueless,,, and I have no where to turn .. I turn to you Dana :) you are my inspiration ... when everyone else says.... nothing can change for Hasan... nothing is possible..... you show me what I can do to help my poor child ... and I know in my heart ..... there is hope .... we are no where near recovery yet ... but that doesnt mean we wont get there .... Im now on a mission to help Him and my family to beat Autism ... to stop it in its tracks ... and finally get my child back... the diet and gut healing has been alot of work ... and I mean alot ... from feb 14th 2008 till now ... from figuring out removing dairy, gluten, corn, soy in all froms... sugars ... phenols... nuts ... and everything that would make him either spin in circles ... egg makes him bite everyone on the block.... nuts make him drag his head across the room like a lawn mower.....phenols like blueberries, honey .. etc make him stay up 3 days in a row.... even butter which has minute amounts or casein but is still dairy he had vocal stimms..... constant mmmmm mmmmmm or eeeeee eeee sounds ... which i could hear from a distance.... corn in baby shampoo make his poops fall apart and give him symptoms or IBS ... irritable bowel syndrome ...,which means small smear of poop every 20 minutes which lead to 40 diapers a day !!!!.aaaah I could keep writing on and on ... but will stop now... I needed to reassure myself ... Im on the right track he is a gut kid,...... I need to heal his gut.... heal it once and for all.... Im on a mission to get more answers and Im hoping i will find some which will help ... hugs to you for working so hard on your website ....... i could kiss you hand if I could Dana ... will keep reading and will por your website here after asking you ..love to the kiddos,..

Wednesday, August 11, 2010

Scd cooking day .....

On the cooking menu today is ...
beef broth (cooked 24 hours)
chicken broth(cooked 24 hours)
chicken and butternutsquash muffins.
mock zuchinni garlic scrammble ..(no egg) IGG
carrot stew with rosmary and olive oil..
organic beef persian kabobs..pictures to be added tonight ..
steamed speghetti squash ( to be eaten with any of the bone brothes)
Zuchiini noodles sauteed with garlic..
I usually cook for 3 days ... the snac are not included in this list

Tips of the day ... do not deep fry food to get your kids fat !! deep frying OXYDIZES fat !! No good for children already with oxidative stress!!
Drizzle raw good fatty oils .. such as organic cold pressed oilive oil, sunflower, safflower, avacodo, walnut, coconut or any good fatty acid profile oil on top of your cooked foods.. to get the good fats .. in their original forms..
One more thing olive oil become toxic over 180 degrees... which is way over when we fry in it !!!.

Tuesday, August 10, 2010

Long day .... lots of diapers ...strange smells..

Today was a very long day .. I may say so .. he was super hungry as it was an aba day of 2 1/2 hours of aba at school... dipers still leaking which im getting very tired of now....
anyways i think we had some die off poop twice today as his diapers smelled somewhat either like camphor balls or something really strong and im hoping it is not chlostridia..!!! I have to get dr. green to put him in the antibiotic along with the difflucan.. this looks like something we need to address asap..! ill keep you updates..

Are you Truely doing gfcf...

Today I am writing about something that is so dear to my heart, as a so many people tell me. " Oh but we have tried the "diet" and we saw nothing!
Now this boils my blood over!! ( sorry but I have to get this out of my system today No Pun inteded! )Okay First of all, a few things Iam listing:
1. Do you even know what foods contain GLUTEN, SOY , MILK AND CORN ?
2. Do you know what you are even looking for?
3.Do you know the number one reason for even doing the diet with your child ?

The answer is surprisingly NO !
 1. Answer: Gluten the holy devil ....I call it. is in things that you wont even know. It is "hidden" in soap, in vinegar, even when you buy "JUST" fries from a drive through ( Oh lord help your child if you are doing this) There is cross contaimination!! They fry the chicken finger AND the fries in the same Frikkin oil !!
You know why I have such strong feeling about this..because I had been cooking my lazy butt, which never seems to get up! for 2 years..thats rite 2 years!! and my son was still "fogyy".
Now you know what Foggy means rite..?
Dozing off, seems like the kid is "high" ...still in their "own world" ....well guess why my son was not turning to his name!!
Guess why he would scream Bloody murder ever time we passed a Burger king...and yeah...those kids who love Mcdonalds ...the fries ..have Gluten powder in them !!
So good luck!!!
Make everything from scratch.....nothing from a box !! If youve got the balls!! Other wise dont waste your time please your doing no one any good , specially your own child.
We do not even use the same spoons, gluten and casein and every other prohibited molecule are the stickiest ..protein molecules of them all. So get your kid their own plate their own storage containers and DO NOT cook your dairy and wheat foods in the childs pots and pans.....Please.....please ..please...well....
okay I vented ...but remember when I followed these rules, my son points to things, he' is present...and is "awake" ..you do not need aba ..to make him say hi to you anymore!! ..

weird rash on hasans chin and bum!!

I have been noticing a weird spotted rash in hasan's chin and bottom for the past 3 weeks. It looks kind of like little pimples... Ill post the pictures up for reference as well. This rash seems to be either viral or bacterial will get it checked out by the dr and repost.. for now we have not been having good days... eye stims are insane and ocds as well... aggression is as crazy as it could be ... we have regressed verablly as well.
I don't know whts going on... starting vitamin A protocol on thursday ... I can't wait to see what the effects will be ..

Standard dose is 400,000 IU per day for two days. If the child weighs less

than 35 pounds, then 300,000 IU for day 1 and 400,000 IU for day 2.