Difflucan and other antifungals ...

So Todays post is short , but I had to document it for future reference. We have been doing Difflucan for hasan for 4 months now, along with biotin and custom probiotics for our yeast/candida protocol. For those of you who might think ..yeast ? candida ? what does that have to do with Autism.
Well it has a major role in autism, atleast for most of the children i have ever known. If your child giggles for no reason, seems spaced out and cannot focus at times, most certainly it is yeast. With all the children I know they have been put on several antibiotics for numerous ear infections most of which already have had tubes put in their ears.
Anyways....it is very hard to eradicate it specially with a weakened or compromised immune system like Hasans. It will surely keep coming back. Balancing the immune systems is key, as well as fixing digestive issues so food can be used up and assimilated instead of fermenting in the childs stomach. Also the number one cuase for  " leaky gut" aka allergies ...is YEAST!.
Other natural remedies we do for daily Candida reduction include fresh carrot,zuchinni  squash and garlic juice. The best of which all have been ofcourse difflucan, but the fresh home made juice,are really helping with his energy levels as he is always soooo I mean sooo lethargic.
I am looking into candex,cadidase and capryllic acid,for use in the near future for an option into non-pharmaceutical antifungals.
The other thing we do is 1 tsp or coconut oil (Raw) 3 times per day, which is also an antibacterial, dissolves viral cell walls as well as is an amazing antifungal.
Will post when I start with the naturals, next month keep your eyes out for an antifungal post.

Oxygen therapy HBOT ....

If there would be one thing, I would put my hard earned money into, it would be no doubt, hyperbaric oxygen therapy.
There is two kinds of oxygen therapy one is mild chamber which can be done at home. And the other hard chamber which has to be done in a clinic or hospital setting.
This therapy has been used to treat many conditions such as carbon monoxide poisoning,cerebral palsy etc. But autism was not on the list. The point of this therapy is that it can "revive" the dead tissues of the brain and body by increasing oxygen and blood flow ...to those dead tissues. Like some parts of the brain and GI system are damaged in autism due to the amount of mercury in the soft tissue ( where did this mercury come from ? take a WILD guess !) So those tissues a dead now ...and thus their is an effect on the brain ....as well as the GI tract.
Anyways we tried hbot because it made sense to us. We thought if the doctors keep talking about Viruses,metals,parasites,candida inflammation in the brain...we thought ...oh "oxygen"  It can take care of all those things ..and "heal the gut" as well. Which we have been working on for the past 3 years of my 4 1/2 year olds life. And thought we need our magic bullet now. For everyone it probably doesnt make sense ..but living with a child who doesnt understand what the heck we are saying ...ever .... we thought its going to work..So
Our protocol which our Doctor did was higher than usual. 1.75 ATA .....40 dives .....the break of 4 weeks....then 2.0 ATA....40 dives.......so ...This protocol is very high and is not recommended for everyone ..but on the basis of Hasans testing, we were dealing with HUGGE massive amounts of Inflammation ......in his brain.
Inflammation is like "Fire" in the brain.....which was put out my HBOT. His receptive language was at the age of a 4 month old baby ....it jumped to 21 months. In 3 months !!  All I can say is Alhumdulliah and thank God for his glory !
The doctor wants us to do mild chamber but since insurance does not cover it ..it is a bit expensive and we are in the process of saving up again. So soon we do the mild chamber rental at home. Fingers crossed..We cant wait.
We did our Clinic treatments here

http://www.californiahyperbarics.com/hbot.html

Chelation...I know we do Transdermal( cream)

So....this was one thing I can assure you I was butt scared to even think about. After reading some stories of chelation going wrong.
Well, I follow this controvercial doctor, who "cured" his son of autism...that sounded promising to me, but really ... does Hasan really have metals..? None of the blood and urine and pooo tests showed high levels of metals ...?
A big question mark, so I held off...and then I had noticed Hasan had not improved any...even with 30 hours of aba per week...plus ......speech, ot...sensory integeration as well..?
Okay hello ..?Why..?
Why is he not moving along...why ? and why have we plateaued ? Well....Then on Facebook I met a mom....actually I read her post..and that post has forever changed my opinion about chelation ...and how media yes just media and bad doctors ( sorry for the good docs who are reading this but ...you know what Iam talking about guys)
She said her son is slowly becoming more "typical"with doing Dr Buttar's protocol...
Me being soooo Proactive about getting to learn and apply anything safe and tried amongst my very few trsuted people I know....added her ...(Iam not mentioning her name as i did not ask her permission) but  she also lived in california..so I emailed her and then called her and she explained everything to me and the safety this protocol had of Transdermal DMPS ....(dont google guys,everything is rubbish on google trust me)

So we started the DMPS..plus gltathione gel....every other day.....and then suddenly my son started getting scared of everything ..regular things....
die off ? maybe .....for those of you who dont know what die off is ..its a detix reaction........getting worse before better ...have you heard that ? Well thats what "die off means" and yeah..
She also told me PROBIOTICS ....are a must....so I started him on Custom Probiotics ......upped the dose to double of what had been recommended, as we needed more than that( Tummy issues will write about that soon) Together both ...Hasan got a temperature a Detox temperatture of 104...which is normally wha he gets whenever he gets sick...
Day 3 of 99.3 ...compounded Motrin only given the first day ONE time....he started requesting things !!
Yes requesting things !!
I mean my son ....the way he ever ... I mean ever asked for anything ......ever ...would be taking my hand ...or whoevers hand ...and throwing it or pushing it to what he wants ....
but never will he actually ask for anything..thats just tooo " normal" . and at the end I will write though many bad bevaviors came with it ....those were temporary...but a good  rx and a good compounding pharmacy is a must...we used park pharmacy in irvine.....then switched to creative compounds which is in oregon and are now doing 200mg dmpl plus 200 mg glutathione  twice a day for 3 days...then break.....in lotion form...and yeah during "on days" Hasan pees alot more ...since he is excreted the metals...from the soo called immunizations ....never am I touching those again..

Hasans daily bath routine..

We give Hasan epsom salt baths with some added baking soda .. about 1 tsp .. to make his bath more alkaline, it helps him calm down.. and helps his sulphation pathway as well ( children with autism have trouble with sulphation) ... he is low in this process as many of our children on the spectrum.

Apple cider vinegar is very good in cleansing and his constipation I give him 1/2 tsp .. not much mixed with some purified warm water and stevia ... Also Hasan has a very weak liver... and this helps with that as well...
Apple cider vinegar has many many health benefits.. i will post a list soon.. stay tuned..

At 7 months of age.. the damage was done.. my son is gone... he is not a happy healthy child anymore

After this point Hasan has numerour ear infections.... cried all the time and wanted to be alone ...

with dad before his 3 month vaccinations

Hasan before his autism... atleast this is what I think ..

Very responsive ... very attatched to me .... stayed always close to me ..

Vitamin A protocol..

We have just completed the high dose vitamin A protocol for high measles titres ... we did not see any rashes from it as mentioned by groups memebers on gfcfkids and valtrexMB12.
we are still on the maintainance dose.. Well... maybe we didnt get anything this time.. will be on the lookout ..for gains.. one thing though exactly 8 days after .. we did get a low grade temperature with runny stuffy nose... Im praying it was the die off reaction ?...

Today is officially research day on Dana's website...

Salute to Dana.. today ....she is a brave, intelligent women ... who needs more appreciation than she gets.. I do'nt know where I would be today without you Dana.
I Thank God everyday for your help that you have given me in ways you don't even know. The nights and days where Iam lost, sad, depressed and clueless,,, and I have no where to turn .. I turn to you Dana :) you are my inspiration ... when everyone else says.... nothing can change for Hasan... nothing is possible..... you show me what I can do to help my poor child ... and I know in my heart ..... there is hope .... we are no where near recovery yet ... but that doesnt mean we wont get there .... Im now on a mission to help Him and my family to beat Autism ... to stop it in its tracks ... and finally get my child back... the diet and gut healing has been alot of work ... and I mean alot ... from feb 14th 2008 till now ... from figuring out removing dairy, gluten, corn, soy in all froms... sugars ... phenols... nuts ... and everything that would make him either spin in circles ... egg makes him bite everyone on the block.... nuts make him drag his head across the room like a lawn mower.....phenols like blueberries, honey .. etc make him stay up 3 days in a row.... even butter which has minute amounts or casein but is still dairy he had vocal stimms..... constant mmmmm mmmmmm or eeeeee eeee sounds ... which i could hear from a distance.... corn in baby shampoo make his poops fall apart and give him symptoms or IBS ... irritable bowel syndrome ...,which means small smear of poop every 20 minutes which lead to 40 diapers a day !!!!.aaaah I could keep writing on and on ... but will stop now... I needed to reassure myself ... Im on the right track he is a gut kid,...... I need to heal his gut.... heal it once and for all.... Im on a mission to get more answers and Im hoping i will find some which will help ... hugs to you for working so hard on your website ....... i could kiss you hand if I could Dana ... will keep reading and will por your website here after asking you ..love to the kiddos,..

Scd cooking day .....

On the cooking menu today is ...
beef broth (cooked 24 hours)
chicken broth(cooked 24 hours)
chicken and butternutsquash muffins.
mock zuchinni garlic scrammble ..(no egg) IGG
carrot stew with rosmary and olive oil..
organic beef persian kabobs..pictures to be added tonight ..
steamed speghetti squash ( to be eaten with any of the bone brothes)
Zuchiini noodles sauteed with garlic..
I usually cook for 3 days ... the snac are not included in this list

Tips of the day ... do not deep fry food to get your kids fat !! deep frying OXYDIZES fat !! No good for children already with oxidative stress!!
Drizzle raw good fatty oils .. such as organic cold pressed oilive oil, sunflower, safflower, avacodo, walnut, coconut or any good fatty acid profile oil on top of your cooked foods.. to get the good fats .. in their original forms..

One more thing olive oil become toxic over 180 degrees... which is way over when we fry in it !!!.

Long day .... lots of diapers ...strange smells..

Today was a very long day .. I may say so .. he was super hungry as it was an aba day of 2 1/2 hours of aba at school... dipers still leaking which im getting very tired of now....
anyways i think we had some die off poop twice today as his diapers smelled somewhat either like camphor balls or something really strong and im hoping it is not chlostridia..!!! I have to get dr. green to put him in the antibiotic along with the difflucan.. this looks like something we need to address asap..! ill keep you updates..

Are you Truely doing gfcf...

Today I am writing about something that is so dear to my heart, as a so many people tell me. " Oh but we have tried the "diet" and we saw nothing!
Now this boils my blood over!! ( sorry but I have to get this out of my system today No Pun inteded! )Okay First of all, a few things Iam listing:
1. Do you even know what foods contain GLUTEN, SOY , MILK AND CORN ?
2. Do you know what you are even looking for?
3.Do you know the number one reason for even doing the diet with your child ?

The answer is surprisingly NO !
 1. Answer: Gluten the holy devil ....I call it. is in things that you wont even know. It is "hidden" in soap, in vinegar, even when you buy "JUST" fries from a drive through ( Oh lord help your child if you are doing this) There is cross contaimination!! They fry the chicken finger AND the fries in the same Frikkin oil !!
You know why I have such strong feeling about this..because I had been cooking my lazy butt, which never seems to get up! for 2 years..thats rite 2 years!! and my son was still "fogyy".
Now you know what Foggy means rite..?
Dozing off, seems like the kid is "high" ...still in their "own world" ....well guess why my son was not turning to his name!!
Guess why he would scream Bloody murder ever time we passed a Burger king...and yeah...those kids who love Mcdonalds ...the fries ..have Gluten powder in them !!
So good luck!!!
Make everything from scratch.....nothing from a box !! If youve got the balls!! Other wise dont waste your time please your doing no one any good , specially your own child.
We do not even use the same spoons, gluten and casein and every other prohibited molecule are the stickiest ..protein molecules of them all. So get your kid their own plate their own storage containers and DO NOT cook your dairy and wheat foods in the childs pots and pans.....Please.....please ..please...well....

okay I vented ...but remember when I followed these rules, my son points to things, he' is present...and is "awake" ..you do not need aba ..to make him say hi to you anymore!! ..

weird rash on hasans chin and bum!!

I have been noticing a weird spotted rash in hasan's chin and bottom for the past 3 weeks. It looks kind of like little pimples... Ill post the pictures up for reference as well. This rash seems to be either viral or bacterial will get it checked out by the dr and repost.. for now we have not been having good days... eye stims are insane and ocds as well... aggression is as crazy as it could be ... we have regressed verablly as well.
I don't know whts going on... starting vitamin A protocol on thursday ... I can't wait to see what the effects will be ..

Standard dose is 400,000 IU per day for two days. If the child weighs less

than 35 pounds, then 300,000 IU for day 1 and 400,000 IU for day 2.

Reply from DR.JAQUELYN MCCANDLESS

DR.JAQUELYN MCCANDLESS   I just dont understand why my DAN doctor does not do the


Difflucan with an anti bacterial.Shouldnt they be done together I feel like we

are creating aggression as few weeks after stopping antifungals.. please suggest

something.
Her Anwer:
Re: [Autism_LDN] TO Dr.JAQUELYN MCCANDLESS






I cannot help what your doctor wants to do, other than suggest you show him page

99 where I suggest treating the yeast and clostridia simultaneously. This

avoids the "yo-yo" effect of first yeast then bacteria then yeast again etc.Â

You could use hi-potency probiotics and some natural anti-yeast and

anti-bacterial agents also, such as citrus seed extract, candistatin,

kandidaplex, Kaprycydin-A etc. if you cannot get a prescription. And of

course, ask for an organic acid urine (OAT) dysbiosis test to show that he does

indeed have both yeast and bacteria; I think they both need to be addressed.Â

Dr. JM

Starting Difflucan Today..

Today is a day that has been long awaited... we have been trying to support Hasan's high liver enzymes to make his liver healthy enough to try a systemic antifungal for the past 8 months. This is such an important step towards his recovery since he constantly has high levels of Candida is his stool cultures. This is his 3rd antifungal, we need to out in place for treating the fungal infection he has.
I have removed all kinds of sugar from his diet as it was feeding the yeats beast , everytime, so no honey or  sugars ... maybe some cooked dilted pear sauce 3 times a week for now until we can win this battle to kick the yeast out once and for all this time. Im also thinking about adding in a yeast support enzymes which works naturally to help the diffluca dissolve the fungal cell wall to actually finish of organism.
Kiling the fungas in his system will help his immune system to regulate itself to fight the other things like viruses and other toxins.
The whole point of this protocol is to bring the Immune system  into balance, help his body rid the fungas,which is obviously way more complex than we can imagine....lets do this .... one step at a time ... let this layer onf the autism onion be peeled away !Inshallah!
The link below will give you lots of information which is by medical doctors .... who treat autism ... all of this can be very overwhelming when you just start reading so ... the link below has slide which will help you understand what supplements help what conditions...
good luck !!
http://legacy.autism.com/danwebcast/presentations/anaheim2007/Ohara.pdf

Today was one of the most difficults days in a long time.... hasan had a bad day with IBS like sympotoms. I think tommorow we need to keep his food simple with lighter options and nothing fried.
I used a different brand of stevia from whole foods ... maybe it has some cc issue ( cross contamination)
Will change it up tommorow and see how he does, He has not been on his B's lately which I think is causing the MB12 to create a shortage ... I gave him 3 drops of super nuthera with his morning avacado smoothie...Husband said he had good eye contact and he was happy to make the line at school as well.... ahh this is something good .. not huge ... but good.

Transitioning to SCD diet ..

We are now in week 3 of the transition into the specific carbohydrate diet. This diet is specifically designed to prmote healing for people with severe GI and malabsorption issues. Since we have been restricting all grains and hasans GI issues and food allergies were always getting worse, I wanted to give this diet a shot.
One thing I know is that on this diet you cannot cheat, just the the GFCF diet you have to follow through or there is no point to even step into it.
Now after introducing all meats and veges into hasans diet .. the only thing left to take out is steivia ... its a plant based sweetner which is not legal on the SCD diet. So now my choices are either honey or well cooked home made pear sauce. Im thinking pear sauce but lets see what I do. Since rotating foods is also very essential from opreventing future food intolerances migh have to consider both in limited quantities since yeast is a major issue with Hasan still.Im hoping in the newxt week we can decide and go into SCD full fledge! Ill keep you posted...

Hyperbaric Oxygen Therapy 1.75 Atm. 40 dives

We have completed 40 dives of the hard chmaber oxyegen therapy at california hyperbarics in Irvine california. Which I had long waited for and finally saved up to do so. This was a difficult two months, I can tell you that much.
But as you know Hasan has so many gut and digestion related problems that me and our DAN! doctor Dr John Green, thought hasan would be a good candidate for it.
I have tried every diet on the planet, being a Nutritionist and studying biomed book for the past 3 years ( which seems like a century) his GI problem have improved but are still profound.
I did NOT see any imporovement during the therapy itself. We completed two months at 1.75 ATM and nothing !!
But low and behold !!!! wait for it ..wait for it ...there has to be a wow rite ? well there is....on exactly the eleventh day ..yes 11th day after stopping treatment ( that is when the blood vessels connect and make new cells in the brain) ...Hasan had no Receptive language..
For those of you who dont know what receptive language is ..it is when i talk and you receive, so the input you receive basically, he had NONE....none at all......zilch I tell ya...
I used to ask every one with a child ..and they said it takes years....
I said what ? years ....and the answer was yes ..you have to "program" their brain...
I mean WHAT ? HOw many things ...phrases can we possibly " teach " him ?
You gotta be kidding..
But ....on the 11th day ....mom was visiting ..so I wanted to seem more "normal" and out of the blue ...asked Hasan .." Hasan where your doggy book?"     Knowing he wouldnt have clue of what  just said to him......and i forgot about it and 2 minutes later ...he came running from his room...WITH his doggy Book !!!! I send salwaat on this one so many times you wont even believe it..
I trumbled but managed to breath and get to the home phone ...to dial my husbands number to tell him ..that He understood what I jus said to him .....he understand us !!!
Thank you HBOT !! I shall forever believe in miracles.swt!
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