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Thursday, October 7, 2010

Hasans daily bath routine..

We give Hasan epsom salt baths with some added baking soda .. about 1 tsp .. to make his bath more alkaline, it helps him calm down.. and helps his sulphation pathway as well ( children with autism have trouble with sulphation) ... he is low in this process as many of our children on the spectrum.

Apple cider vinegar is very good in cleansing and his constipation I give him 1/2 tsp .. not much mixed with some purified warm water and stevia ... Also Hasan has a very weak liver... and this helps with that as well...
Apple cider vinegar has many many health benefits.. i will post a list soon.. stay tuned..

At 7 months of age.. the damage was done.. my son is gone... he is not a happy healthy child anymore

After this point Hasan has numerour ear infections.... cried all the time and wanted to be alone ...

with dad before his 3 month vaccinations

Hasan before his autism... atleast this is what I think ..

Very responsive ... very attatched to me .... stayed always close to me ..

Vitamin A protocol..

We have just completed the high dose vitamin A protocol for high measles titres ... we did not see any rashes from it as mentioned by groups memebers on gfcfkids and valtrexMB12.
we are still on the maintainance dose.. Well... maybe we didnt get anything this time.. will be on the lookout ..for gains.. one thing though exactly 8 days after .. we did get a low grade temperature with runny stuffy nose... Im praying it was the die off reaction ?...

Saturday, August 14, 2010

Today is officially research day on Dana's website...

Salute to Dana.. today ....she is a brave, intelligent women ... who needs more appreciation than she gets.. I do'nt know where I would be today without you Dana.
I Thank God everyday for your help that you have given me in ways you don't even know. The nights and days where Iam lost, sad, depressed and clueless,,, and I have no where to turn .. I turn to you Dana :) you are my inspiration ... when everyone else says.... nothing can change for Hasan... nothing is possible..... you show me what I can do to help my poor child ... and I know in my heart ..... there is hope .... we are no where near recovery yet ... but that doesnt mean we wont get there .... Im now on a mission to help Him and my family to beat Autism ... to stop it in its tracks ... and finally get my child back... the diet and gut healing has been alot of work ... and I mean alot ... from feb 14th 2008 till now ... from figuring out removing dairy, gluten, corn, soy in all froms... sugars ... phenols... nuts ... and everything that would make him either spin in circles ... egg makes him bite everyone on the block.... nuts make him drag his head across the room like a lawn mower.....phenols like blueberries, honey .. etc make him stay up 3 days in a row.... even butter which has minute amounts or casein but is still dairy he had vocal stimms..... constant mmmmm mmmmmm or eeeeee eeee sounds ... which i could hear from a distance.... corn in baby shampoo make his poops fall apart and give him symptoms or IBS ... irritable bowel syndrome ...,which means small smear of poop every 20 minutes which lead to 40 diapers a day !!!!.aaaah I could keep writing on and on ... but will stop now... I needed to reassure myself ... Im on the right track he is a gut kid,...... I need to heal his gut.... heal it once and for all.... Im on a mission to get more answers and Im hoping i will find some which will help ... hugs to you for working so hard on your website ....... i could kiss you hand if I could Dana ... will keep reading and will por your website here after asking you ..love to the kiddos,..

Wednesday, August 11, 2010

Scd cooking day .....

On the cooking menu today is ...
beef broth (cooked 24 hours)
chicken broth(cooked 24 hours)
chicken and butternutsquash muffins.
mock zuchinni garlic scrammble ..(no egg) IGG
carrot stew with rosmary and olive oil..
organic beef persian kabobs..pictures to be added tonight ..
steamed speghetti squash ( to be eaten with any of the bone brothes)
Zuchiini noodles sauteed with garlic..
I usually cook for 3 days ... the snac are not included in this list

Tips of the day ... do not deep fry food to get your kids fat !! deep frying OXYDIZES fat !! No good for children already with oxidative stress!!
Drizzle raw good fatty oils .. such as organic cold pressed oilive oil, sunflower, safflower, avacodo, walnut, coconut or any good fatty acid profile oil on top of your cooked foods.. to get the good fats .. in their original forms..
One more thing olive oil become toxic over 180 degrees... which is way over when we fry in it !!!.

Tuesday, August 10, 2010

Long day .... lots of diapers ...strange smells..

Today was a very long day .. I may say so .. he was super hungry as it was an aba day of 2 1/2 hours of aba at school... dipers still leaking which im getting very tired of now....
anyways i think we had some die off poop twice today as his diapers smelled somewhat either like camphor balls or something really strong and im hoping it is not chlostridia..!!! I have to get dr. green to put him in the antibiotic along with the difflucan.. this looks like something we need to address asap..! ill keep you updates..

Are you Truely doing gfcf...

Today I am writing about something that is so dear to my heart, as a so many people tell me. " Oh but we have tried the "diet" and we saw nothing!
Now this boils my blood over!! ( sorry but I have to get this out of my system today No Pun inteded! )Okay First of all, a few things Iam listing:
1. Do you even know what foods contain GLUTEN, SOY , MILK AND CORN ?
2. Do you know what you are even looking for?
3.Do you know the number one reason for even doing the diet with your child ?

The answer is surprisingly NO !
 1. Answer: Gluten the holy devil ....I call it. is in things that you wont even know. It is "hidden" in soap, in vinegar, even when you buy "JUST" fries from a drive through ( Oh lord help your child if you are doing this) There is cross contaimination!! They fry the chicken finger AND the fries in the same Frikkin oil !!
You know why I have such strong feeling about this..because I had been cooking my lazy butt, which never seems to get up! for 2 years..thats rite 2 years!! and my son was still "fogyy".
Now you know what Foggy means rite..?
Dozing off, seems like the kid is "high" ...still in their "own world" ....well guess why my son was not turning to his name!!
Guess why he would scream Bloody murder ever time we passed a Burger king...and yeah...those kids who love Mcdonalds ...the fries ..have Gluten powder in them !!
So good luck!!!
Make everything from scratch.....nothing from a box !! If youve got the balls!! Other wise dont waste your time please your doing no one any good , specially your own child.
We do not even use the same spoons, gluten and casein and every other prohibited molecule are the stickiest ..protein molecules of them all. So get your kid their own plate their own storage containers and DO NOT cook your dairy and wheat foods in the childs pots and pans.....Please.....please ..please...well....
okay I vented ...but remember when I followed these rules, my son points to things, he' is present...and is "awake" ..you do not need aba ..to make him say hi to you anymore!! ..

weird rash on hasans chin and bum!!

I have been noticing a weird spotted rash in hasan's chin and bottom for the past 3 weeks. It looks kind of like little pimples... Ill post the pictures up for reference as well. This rash seems to be either viral or bacterial will get it checked out by the dr and repost.. for now we have not been having good days... eye stims are insane and ocds as well... aggression is as crazy as it could be ... we have regressed verablly as well.
I don't know whts going on... starting vitamin A protocol on thursday ... I can't wait to see what the effects will be ..

Standard dose is 400,000 IU per day for two days. If the child weighs less

than 35 pounds, then 300,000 IU for day 1 and 400,000 IU for day 2.

Thursday, July 29, 2010

Reply from DR.JAQUELYN MCCANDLESS

DR.JAQUELYN MCCANDLESS   I just dont understand why my DAN doctor does not do the


Difflucan with an anti bacterial.Shouldnt they be done together I feel like we

are creating aggression as few weeks after stopping antifungals.. please suggest

something.
Her Anwer:
Re: [Autism_LDN] TO Dr.JAQUELYN MCCANDLESS






I cannot help what your doctor wants to do, other than suggest you show him page

99 where I suggest treating the yeast and clostridia simultaneously. This

avoids the "yo-yo" effect of first yeast then bacteria then yeast again etc.Â

You could use hi-potency probiotics and some natural anti-yeast and

anti-bacterial agents also, such as citrus seed extract, candistatin,

kandidaplex, Kaprycydin-A etc. if you cannot get a prescription. And of

course, ask for an organic acid urine (OAT) dysbiosis test to show that he does

indeed have both yeast and bacteria; I think they both need to be addressed.Â

Dr. JM

Starting Difflucan Today..

Today is a day that has been long awaited... we have been trying to support Hasan's high liver enzymes to make his liver healthy enough to try a systemic antifungal for the past 8 months. This is such an important step towards his recovery since he constantly has high levels of Candida is his stool cultures. This is his 3rd antifungal, we need to out in place for treating the fungal infection he has.
I have removed all kinds of sugar from his diet as it was feeding the yeats beast , everytime, so no honey or  sugars ... maybe some cooked dilted pear sauce 3 times a week for now until we can win this battle to kick the yeast out once and for all this time. Im also thinking about adding in a yeast support enzymes which works naturally to help the diffluca dissolve the fungal cell wall to actually finish of organism.
Kiling the fungas in his system will help his immune system to regulate itself to fight the other things like viruses and other toxins.
The whole point of this protocol is to bring the Immune system  into balance, help his body rid the fungas,which is obviously way more complex than we can imagine....lets do this .... one step at a time ... let this layer onf the autism onion be peeled away !Inshallah!
The link below will give you lots of information which is by medical doctors .... who treat autism ... all of this can be very overwhelming when you just start reading so ... the link below has slide which will help you understand what supplements help what conditions...
good luck !!
http://legacy.autism.com/danwebcast/presentations/anaheim2007/Ohara.pdf
Today was one of the most difficults days in a long time.... hasan had a bad day with IBS like sympotoms. I think tommorow we need to keep his food simple with lighter options and nothing fried.
I used a different brand of stevia from whole foods ... maybe it has some cc issue ( cross contamination)
Will change it up tommorow and see how he does, He has not been on his B's lately which I think is causing the MB12 to create a shortage ... I gave him 3 drops of super nuthera with his morning avacado smoothie...Husband said he had good eye contact and he was happy to make the line at school as well.... ahh this is something good .. not huge ... but good.

Friday, July 9, 2010

Transitioning to SCD diet ..

We are now in week 3 of the transition into the specific carbohydrate diet. This diet is specifically designed to prmote healing for people with severe GI and malabsorption issues. Since we have been restricting all grains and hasans GI issues and food allergies were always getting worse, I wanted to give this diet a shot.
One thing I know is that on this diet you cannot cheat, just the the GFCF diet you have to follow through or there is no point to even step into it.
Now after introducing all meats and veges into hasans diet .. the only thing left to take out is steivia ... its a plant based sweetner which is not legal on the SCD diet. So now my choices are either honey or well cooked home made pear sauce. Im thinking pear sauce but lets see what I do. Since rotating foods is also very essential from opreventing future food intolerances migh have to consider both in limited quantities since yeast is a major issue with Hasan still.Im hoping in the newxt week we can decide and go into SCD full fledge! Ill keep you posted...

Thursday, July 8, 2010

Hyperbaric Oxygen Therapy 1.75 Atm. 40 dives

We have completed 40 dives of the hard chmaber oxyegen therapy at california hyperbarics in Irvine california. Which I had long waited for and finally saved up to do so. This was a difficult two months, I can tell you that much.
But as you know Hasan has so many gut and digestion related problems that me and our DAN! doctor Dr John Green, thought hasan would be a good candidate for it.
I have tried every diet on the planet, being a Nutritionist and studying biomed book for the past 3 years ( which seems like a century) his GI problem have improved but are still profound.
I did NOT see any imporovement during the therapy itself. We completed two months at 1.75 ATM and nothing !!
But low and behold !!!! wait for it ..wait for it ...there has to be a wow rite ? well there is....on exactly the eleventh day ..yes 11th day after stopping treatment ( that is when the blood vessels connect and make new cells in the brain) ...Hasan had no Receptive language..
For those of you who dont know what receptive language is ..it is when i talk and you receive, so the input you receive basically, he had NONE....none at all......zilch I tell ya...
I used to ask every one with a child ..and they said it takes years....
I said what ? years ....and the answer was yes ..you have to "program" their brain...
I mean WHAT ? HOw many things ...phrases can we possibly " teach " him ?
You gotta be kidding..
But ....on the 11th day ....mom was visiting ..so I wanted to seem more "normal" and out of the blue ...asked Hasan .." Hasan where your doggy book?"     Knowing he wouldnt have clue of what  just said to him......and i forgot about it and 2 minutes later ...he came running from his room...WITH his doggy Book !!!! I send salwaat on this one so many times you wont even believe it..
I trumbled but managed to breath and get to the home phone ...to dial my husbands number to tell him ..that He understood what I jus said to him .....he understand us !!!
Thank you HBOT !! I shall forever believe in miracles.swt!
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