Phosphatidyl Chloine IV

As nerve wrecking today was , so far so good we had our first IV Push with Phosphatidyl Choline for Hasan. Was praying he does well. Will keep you guys updated ! Looking for more awareness and speech. Fingers crossed see nothing yet though.

CARD praises ! Center for Autism Related disorders

Its been long over due that I praise the best Applied behavior analysis company we have ever worked with is CARD. Center for autism and related disorders. I love them I love the founder Doreen granpeesheh and as well as our home program Supervisor Catherine Minch !!! They have done wonders for Hasan. Their philosophy is amazing the level of expertise is incredible I have gained so much from them as a mother of a child on the spectrum on how to teach my child and how to make him respond, play,learn, socialize. I have finally found the people who understand me , my child and are willing to work harder then me to help MY child grow and learn. Also how to live life to his fullest potential. I promote aba 100%!  For those of you who do not believe in aba, you have not seen the correct way  this therapy is done perhaps as there are many companies claiming to be good( I know I have worked with 5 of them !). There are way too many companies out there who just don't get it. But I'm blessed to have found CARD .  I know CARD is a huge piece in Hssan's recovery and I owe ALOT to them! One day when my child is to his highest level of functioning I will hands down say it was because of our Supervisors and CARD's tireless dedication to constantly look over Hasan's daily programs, his behaviors , the functions of his behaviors keeping in mind his health as well. She has always been available for me to look upto, ask questions emails etc. I am beyond thankful to you Cat ! And very greatful for Doreen Granpeesheh to have founded CARD I have hope for Hasan now ,Hope for recovery!!  It seems like a possiblitly that can be achieved through teamwork, yet difficult ,but not impossible. Inshallah Next month we will have a 40 hour per week program with CARD therapists shadowing  Hasan in a Typical classroom, we are putting him in a private school (finally) Thank the Lord  !!!!! I believe this will be life changing for him, a huge positive step forward. Keep us in your well wishes. Its time for the autism tables to turn.............."to turn our way" ....its time to step into RECOVERY mode  (iA mA) !!!!!!!!!!!!!!!!!!!! If you know a child with autism please look into aba! You wont regret it!
Posting the Link below !
http://www.centerforautism.com/

Gut healing recipe :) fermented cabbage !!!

This recipe is super dooper easy and it will patch up your ulcers in a jiffy !! I actually started to ferment after a few of my friends told me on how they recovered from chronic ulcers in their stomach thoguh drinking cabbage juice !! But for me that idea was not appealing as I knew it would be hard to digest for my kiddo as he has a very sensitive gut. So I deiced to ferment the cabbage this recipe has just one teaspoon sea salt mixed in 1 cup filtered water mix with the chopped organic cabbage and keep it closed in a glass jar for 3 weeks don't open it !!! . That's it :) this ferment will give you lots of natural  bioavailable Glutamine which is an amino acid essential for muscle and gut repair! So I decided to supplement this amino acid through the natural source Cabbage ! One head of cabbage (I added shredded carrots for color I like color that's an entire new topic ;) ) The main ingredient is sea salt which is key don't use table salt please. This jar will last you one month , I just pour the juice over their dinner of lunches and they have gotten enough for the day . Hope this help you guys too ! Fermenting is very easy I don't know why I waited this long .. Good luck patching up that gut =)

Methyl B 12 shot dosage adjustments.

This post has been long awaited , I have gotten so many questions form all of you guys about how to figure out the best dosage for our kiddos without negative side effects that are uncontrollable. I can advise one thing from what I know , this would just be my two cents and honest opinion but you go do the research and your thought might differ from mine. For Hasan it took me 3 years ...to figure out HIS best dosage for MB12 , and it definitely changed every few months as well. For him we started off with a pretty high dose which was wrong I think because the one thing with Any ala carte B vitamin is ,,giving high doses of just one B vitamin can cause a deficiency in the essential B's 100% of them time. So make sure you don't over do it. With that being said the rough part is most of our spectrum kids cannot tolerate B-vitamins at all, it make them super hyper they stop eating and some can also get allergic shinner under their eyes because of the phenol and salicylate content in the B's. Some B vitamins are also made from fungal sources which in some cases cause a sensitivities of their own. Make sure you know how the vitamin is extracted ant what the true source or extracted is. Please please use a trusted company to buy the vitamins you use for these kids it can be a night and day difference. Same for the MB12 shots, not all pharmacies known how to get the compounding of this vitamins correctly, if the Methyl cobalimin is has a pH level that is not correct you just threw your money and your child's road to more "speech and focus" down the drain. Ask around if anyone you live around has used shots from the compounding pharmacy you have used. For us we only use 2 pharmacies beside those two NONE have worked .....( around 6 others we have tried) we have seen major sometimes minute regressions from the quality of the shots as well.
The initial dosage we had were according to Doctor Neubrander's recommendations to our DAN! in his training  64.5 mcg/kg once every 3 days to the adipose tissue of the buttocks at an angle severe and horizontal enough to guarantee a “shallow” subcutaneous delivery. The only syringes allowed are Becton Dickson 3/10 cc insulin syringes with an 8 mm, 31-gauge needle, item #328438. *** Be sure to understand each part of the injection instructions and follow them exactly! ***
Tips from me go as shallow as you can or your kid will just pee it out and you will see no lasting results.
When we started, Hasan was 31 pounds 25 months old and we were at 0.1 ml with the above concentration. Result were good but the initial 6 weeks he was extremely emotional , hyperactivity and grunting were through he roof. But it was a negative positive ....he had started to use his words almost immediately and didn't tantrum as much in public. After the 6 weeks period was over we added DMG it did not work for us..His speech stopped almost immediately and he had NO words and had regressed back to square one ! Talk about heartache for us , after those horrible 6 initial weeks and then an addition of just one supplements threw him off several months !!!
We tweeked the dose again to dosing every other day which seems to help him make close vocal approximations , but NO true words. So we went to everyday high daily doses which seemed to do the tricvk but I had to make sure I get his other B vitamins in through diet which was ALOT of work !!! I had to pull out all my Nutrition education and then some to get this kid to have a balanced outcome from the shots. For me I believed in the methyl donors for Autism and since seeing the initial positive negatives with the shots , I had to find the correct dosage. Inside you just know as a mother if something will work or not ...its just a mommy instinct , you know you have one , I'm very persistent trust me .

I think you would be too if you had been told your child would never talk! I was not willing to give in. Anyways the high dose daily was getting to come to a plateau so I decided to stop the shots to take a break and dose with the other B's just so the body has time to balance itself out which seemed to be a good idea. We stopped shots for 6 weeks and then dosed with B-50 vitamins in that time period along with IV glutathione( this was one the best interventions for speech)  and folinic acid in 1600 mg Folapro to balance things out. After this break when we added back the MB12 shots we saw a HUGE jump in language and eye-contact Mashallah. Yes I do give him the shots myslef ! And NO I do not recommend oral B12 for ASD kids they cause alot of dysbiosis and will not work at all the way this will I have heard from every single MB12 recovery just sharing these key points !!!  Now we do every other day shots of a lower dose 0.05 ml .
May God help us keep moving forward with all your well wishes and prayers we pray to move forward giving thanks each day.
Three key points about the MB12 shots.
1.Keep refrigerated NOT frozen !
2.Keep away from sunlight or the potency will go down to zero this is why the vial is covered will foil.
3. Use the correct needles and learn how to give a subcutaneous injection ( 30 degreee angle) only in the BUMM !   NOT an Intramuscular !! :) Good luck !
For more information regarding MB12 I have posted a link to DR. Neubranders site, who is the master mind behind MB12 therapy for autism. www.drneubrander.com

Awareness and Speech

Sorry for not posting for a while here but I have been going through some huge emotional roller-coasters..but that's not always  a bad thing in my case. This usually happens when we are not doing anything new for Hasan and I start feeling like a Loser !! I don't know about you but for me when my mood goes down it usually means I'm cooking something up in my head in regards to Hasan's Autism treatments.So we are doing some interesting things for him , first of all which includes an IV infusion.
This time we are using phosphatidylcholine ! Intravenous phosphatidylcholine is used for many reasons and this will be our next step in Biomed. It helps with detoxification and is a very important nutrient in cell membrane function and liver detoxification.It is also a primary nutritional building block for the neurotransmitter  , "acetylcholine". It is also known to be very calming,since we have HUGE hyperactivity!!! This treatment is used to clear fat soluble toxins from the system as a benefit to brain and nerve cells and as part of a "phospholipid exchange" protocol aimed at treating neurotoxicity / fat soluble toxins (aka Pestricides and  flouride).

PC also directly up-regulates the fluidity of the cell membrane, improving its vitality, which is essential for all of metabolism, including neuronal transmission. Poor neuronal response is degraded in all the neurological disorders and is directly improved with Phosphatidylcholine (PC) therapy.


Raising PC levels plays an important role in improving memory and recall, and has clinically shown to improve the flow of information of all the senses and most significantly eyesight.


PC given either orally or intravenously helps restore the proper integrity of the cell membrane thereby restoring proper function of organ systems, especially the liver, the gut, the brain, immune system, heart, and hormonal system, which ultimately improves the total health of the individual.
This treatment was chosen by two well known Autism specialists and I have commenced several hours of research trying to ask people as well as read about the treatment. We will be doing 2-3 IV's to see if any improvements with Awareness and Speech. Wish us luck this will be our next positive puzzle piece, hope it fits!!! ...I know in my heart I will see something positive for Hasan. Hoping for the best, remember him in your prayers we desperately need them.