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Sunday, July 8, 2012

Parasite treatment !

Today was the first day of treating parasites for Hasan. We started Albendazole and he was very emotional today . Cried most of the day :( Hoping this will become better behavior soon !

Friday, July 6, 2012

Low energy .. Time for some Mito Help

Past 2 days Hasan has been more lethargic than usual and that certainly not normal to me. He just seems very tired and not able to run as much when we go to the park. Since its summer break I have been taking both kids to the park everyday , I try to switch the location so that we can work on rigidity . I am thinking the lethargy is because I haven't had Hasan take any Mitochondrial supports for a few weeks now. But I am going to have to add them back in. Will update the Mito-cocktail info soon. We will be adding acetyl L Carnitine , idebenone,creatine and Ribose to our daily regimen. Let's see if that will get a hold of the situation . If not we check Thyroid function , adrenal function as well as blood sugar levels .. May the force be with this kiddo .. No really let it be please ?!

Wednesday, July 4, 2012

My answer to people who asked "why we chelate "

First off I want to write this post for the people who are not well versed with Biomedical treatment and to those who think they have studied in medical school and think they have got all the training and education in the world. To the people who have told me "Glutathione""DMPS" is dangerous and chelation is unproven . Ahem Yo put a big fat sock in it first!!!'.
. Now I shall proceed ......There are many reasons I decided to chelate my son , first of being that the number one month the problems started we had mercury toxicity symptoms . What symptoms you say ?? Well here ....Hand flapping(HUGE) , screaming , tantrumming , no focus , no facial recognition ,NO awareness , no speech , no complex reasoning ,multiple food allergies , hypothyroidism , stunted growth , blurred vision etc etc etc . The thing is the root of everything was caused because of metal poisoning . And I wanted to tackle it first . I do not and will not Want My child on a restricted diet all his life. I do not want him to have hypothyroidism which will not reverse itself without removing the heavy metals . I just don't understand why you wouldn't want to take the crap out of your child's body when he HAS autism !! It is destroying so much staying in there.. As time goes on they will need vision glasses .. Big focal lenses , seasonal allergies , extended bellies and I just can't let it happen , I cannot and just will not . I am sorry but if I need to recover my son inshallah which I will do , God willing it will happen .... It Will happen soon enough ... Just so the logics , the science , the damage through vaccine will come out and mothers like me will stand up for the rights of our children .

As for me I believe in removing the problem , not covering it up .I just want my child back to optimal functioning and health ,this will require removing the junk and replenishing the body with what those metals have robbed them
Of . Not many children with autism 'recover 'that have not been chelated .. It's the top treatment in Autism recovery .. If you have any questions please do ask me , call or email I will help ...I believe that God has put us here for a reason the reason is infront of you .

Sunday, July 1, 2012

When your not JUST a mom .

This post has been on my mind for a while . It's difficult to be a mom , it's even harder to be a mom of a child with special needs, the point is a woman is never really responsible for just one thing . Past few days have been rough on me , specially because of marital issues , that's a different post but I can say that much that I am very very bitter in my heart because of it . It doesn't mean I am going to stop treating my son , it only means I am the only one paddling this boat and means it requires more time, effort and strength. To any single mother out there please take matters into your own hands.... I have completed my training as a Nutritionist , all the training and data taking in Behavioral modification and I have gotten my phlebotomist training to be able to give intravenous meds to my kids that obviously I cannot afford to pay 200-400 per week. If you have a child that benefits from a treatment go out there , learn how to implement it ,learn how to stand up and do it your self stop waiting for people ....,timing is very crucial in recovery. You are in control and no one can stop you "if you want"! oh yeah and please don't let your children get away with autistic behaviors when you can redirect !!! ... Redirect them to a more appropriate behavior even if it means all day all night .. I promise they won't continue when they know they cannot , don't give in to autism ..it cannot take over your life unless YOU let it !! ... You just have to keep going even if it means you stop everything else at the moment , get up and make a difference. Too many kids , too little time ... do it yourself ,because your kids need you .. My job of putting this post out-there is done ... Cheers

Saturday, June 30, 2012

Chelation update

So three days ago we had an IV push for chelation increasing the DMPS to 100 mg , Glutathione to 400 mg (50mg/ml), Phosphatadylcholine one vial that is 250mg. Hasan was a a lot calmer but has a few aggressive episodes. Played tag and the vocals reduced to just half !!! Thank God !!! Let's hope I can find something to help with his Eye stims and OCD!! Will be starting olive leaf extract and Lysine soon !! First we have to treat the parasites and the yeast ... Hoping to find something that helps with the teeth grinding and loud vocals !!! Man I am tired tonight ..

Wednesday, June 27, 2012

OCD I will get you !! Trust me I will

So it's been a long and crazy journey ..past few months have been extremely stressful for my family . One we travelled across the world for my sisters wedding , then now we are stuck with OCDs that won't quit ! So we have done Vancomycin and that didn't work , azythromycin didn't do anything but increas the tantrums ! So I decided to ask the doctor for treating the Parasites . We will be starting 1) Albendazole as well as 2) Nutricidal 3 caps twice/day for 2 weeks then 2 twice/day for 3 weeks. The reason for this was the Constant teeth grinding and high vocals ! I'm talking high !! We will see how this goes but I am sure it has to help .. God make this easier for my child help him calm himself thru your healing ..

Wednesday, April 18, 2012

"Never underestimate the power of words".

 Recently I was approached by a mother of a young child who had recently gotten diagnosed . She looked at me with her tear filled eyes after over hearing me talk to the doctor about my son and came up to and said,      " How do you stand up straight and not break down and how do you smile after knowing your child will never have a future ?, how are you so strong where do you get your strength from ,because I don't think I can survive?"  When I initially saw her with her child I connected to her pain right from the get go, I saw her eyes I saw her frown I knew as a mother what I'm about to witness and was already thinking of a way to just go up to her hold her hand and tell her there's hope, I want to help you ..but how would I do that ? I wish someone would have done that for me when my son was diagnosed............but anyways  ...... those questions brought back so memories for me that ,it was she had had blew off a bunch of leaves off the ground, that were covering up a story, the story of " My true Strength" .It was more like her words had dug deep down into my soul ,into my heart and all that I had lying inside of me for 20Years ... I reminded myself of my Grandmother and how she spent hundreds of hours with me when I was 9 years old and very chubby child rather lost and timid and scared,  telling me inspirational stories of faith, of hope of "strength " yes strength .. I remember my tiny Room in a corner lot of an apartment building in southern California and her lying on the floor with me with the rays of the sun coming down on her wrinkled up hands and her eyes filled with surma  [an Indian eye pencil ] and her telling me stories of some of which I have never forgotten she told me usually after a long story  "Marium Strong banna hai Strong ,bohat strong meri jaisi " which in English means you have to become strong Marium, strong very strong just like me"  ..                                                                                            Those words.... that moment .....those few seconds of her time ,her voice , her passion her inner strength had somehow gotten under my skin ... And till this day each time I fall weak .. I close my eyes and take myself back in time ,to call Upon her voice , her eyes lit up from the sunlight coming through the window of my tiny room , those wrinkled hands holding a book she had just read to me, I'll Never forget , and those words that breathed a breath of strength in my heart . Iam thankful for the time she has given me to give me what I needed more than the roof on my head or the food in my plate at that time  .. She gave me a heart to stand up to roughest of times and smile and move forward as if I did I will be a "True Warrior". Never underestimate the power of words ......Stay Strong and positive xoxoxo                                                                                      P.s. I did talk to that mom and she and I are both thankful to have found each other and on how far our children have gotten because we stayed "Strong"  ;]

Monday, January 16, 2012

A list of treatments that need to be done ..

This list is basically note to myself "Hasans mom" for what I want to do in this year for Hasan. Here we go this year I will make sure this gets done .. Ok so if something happens to me , please make sure my son is treated , he is not well. He needs medical attention autism is not just a delay! Here's my list may God help me get help for Hasan. This is my reason to live now ... Hbot hard chamber 40 dives at 1.75 . Also Keep IV glutathione and PC going include Vit C . Anti inflammatory since I feel he has a lot of inflammation ! Trial of IVIG with Dr. Gupta since I suspect PANDAS which is strep infection in his blood . Also get him treated and scoped with dr krigsman in newyork or austin Texas Need to fix his gut !! Keep him on digestive enzymes and SCD for until possible ( 3 years atleast). Keep home daily hbot going ! Don't stop B12 either. Starting leucovorin for his folate antibodies in his brain to reverse the autoantibodies against folate , starting slow going upto 25mg working from 5 mf taking 3 months to go upto full dose . IS starting listening therapy for attention and focus. Also continuing homeopathy to get him to optimal health and reduce ADHD symptoms. Keep him in a 40 hr Card program in a typical classroom and continue home program possibly asking regional center for 15 in home hours since the other hours will be used at school leaving only 10 in home! Which is not nearly enough to jangle Hadans behaviors ! We will get no where with just 10 in home1 on 1 . Prayers needed . This child is going to get help he is going to feel better and God will help me get him help . I'm keeping my faith holding on to my prayers tonight and stating positive . I believe .....Dear lord you are our Savior