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Tuesday, September 27, 2011

A Big Burning Question .....

Ok so we have been working with CARD Center for autism related disoreder for 5 months now and it has been amazing alhumdullilah ! Hasan has had 23 hours of aba per week and now the 11 extra for 2 months ..still not the 40 hours of aba I wanted ...but nonetheless, took an arm and a leg to get that therapy going. We have thought him how to sit ,to stand, to walk, to talk, to tell us when he gets hurt ( knowing he is non responsive to pain) which really scares me :( and a bunch of other things.After all that hard work... plus school and speech therapy our day is no where close to normal , we have an awesome home team for Hasan.....But we are really struggling with the school we always have actually....The new School district has put Hasan in a placement none of the team members are happy with they put him in a severe class room ! I know he gets more attention but at the same time there will be more behaviors to copy ..BAD behaviors..So the question is how to approach it and change it....I know many of the parents struggle with the school's funding .I know Hasan needs a mainstream class...he can IMITATE he knows whats going on ...He needs to be challenged...will the school district approve our request? ..what approach should I take with them? ... we work so hard at home ..... following through with Hasan ...I don't want all of that to get reversed..I am clueless what to do and dreading it  ...He needs mainstreaming ...he needs a Shadow to keep him on task ...I will get it for him though,whatever it takes!!! ...because in my mind it is time to put on those COMBAT BOOTS !! Folks it is time to enter the battle field (armed of course), this really does mean war ya know :/

Tuesday, September 20, 2011

Clearing packets

We finally started our second round of clearing packets that we had for Hasan. These were from Rudi verspoor and right about 3 weeks ago we started the " A" packet of clearing if you are a follower well you know how much I panicked when Hasan had huge mouth sores ...It was definitely a clearing, as soon as we gave the first pack Hasan was super stimmy ( if your new to the Autism world 'stimmy " means hyperactive non compliant and maybe have  unusual preoccupations) Trust me I can put that into worse words :D . But anyhow ....as soon as we gave the second pack he broke out with another mouth sore and within hours started coughing...well Iam not surprised we are also clearing the Pneomococal vaccine ( Pneumonia) ...he has had a temp the first day and now on the 4th day .....one good thing is he cleaned up all by himself  ....and it wasnt even his mess..? well I hope this positive change stays......For you ..your thinking sheesh big woopty deal ...hah!!? ..he cleaned up !? well ..we are talking about a child if told to clean up would hit the walls till he dropped to the floor .....so Yeah it is a big deal !!!....something positive I always appreciate ....if you are a mommy warrior like me ..you know what Iam talking about .......moving forward ...lets hope we stay positive ..yet another peel of the onion has been shed ....the Autism onion .....though it's not a real onion ....my eyes are teary anyways..............till the next vaccine clearing ...stay positive!

Tuesday, September 6, 2011

viral sores from hell .............

It has been a very long and painful labor day weekend for Hasan. His birthday this year was probably the most painful one yet :( Since we have cleared the viral vaccines I think they are surfacing now. Since he has huge sore all over his lips. Started on the inside of his upper lip then transferred to the bottom lip right under it  and now next to it and round it! So he has been biting on them and now they are infected ...................I don't know how to heal him. The doctors don't really say or do anything ............I have been begging them for something as his lips are bleeding and have pus in them for three days.......oh the agony I hear in his voice when he cries .....Praying to the lord that his DAN! doctor will prescribe something today and also talking to the homeopath in two hours. I need to fix this ...I need to fix it now....I am posting pictures of when the sore just started ..they are 100% worse today..:(